It’s hard. It’s really, really hard.
We were hoping we might have gotten some resolution with Charlie’s cardiac issues before the neurological ones kicked in. No such luck. So we’ve been waiting a few weeks for a brand new medicine to do its magic. No such luck there, either. So today we add another one and wait some more. Next week, we go back to Boston.
And since I actually can’t resist a good metaphor, I guess I’d agree with those who’ve told me TSC is a journey. It has definitely been a journey for us so far. And we are climbing every mountain. It would have been nice to get to the bottom of one before we had to scale another, but whaddayagonnado? You’re gonna keep on keepin’ on.
Meanwhile, Charlie keeps on being Charlie. He just weighed in at the 90% percentile for kids his age. He’s starting to reach for toys and shake rattles. He continues to grab at my hair and glasses. And if you do something really, really stupid, he will laugh at you.
There’s all of that. And there’s more. Here are a few favorites.
Charlie Swims
Charlie Practices Defense Against the Dark Arts
Charlie Shops at Wal-Mart
Charlie Goes to the Drive-In
Charlie Puts His Foot in His Mouth
And last but not least, Charlie visits Sesame Street, which is love at first sight . . . brought to you by the letter P.
